The Catalyst

New Report Highlights a Decade of Innovation in Rare Diseases

Posted by Stephanie Fischer on March 5, 2015 at 12:00 PM

Despite Scientific Challenges, Biopharmaceutical Researchers Making Progress against Rare Disease

While any given rare disease affects fewer than 200,000 people in the U.S., rare diseases cumulatively affect 1 in 10 Americans and an estimated 350 million people worldwide.

On Saturday, there were efforts around the world to mark Rare Disease Day. This year’s theme, Living with a Rare Disease, put the focus on the daily impact on patients, families and caregivers:

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Topics: Medicines in Development, Science, FDA, Rare Diseases, Patients, chronic disease, Cystic Fibrosis

New Analysis: Who Benefits from Contract Pharmacy Arrangements in 340B Program?

Posted by Karyn Schwartz on March 3, 2015 at 12:30 PM

How can a program originally designed to help the deserving clinics treating our nation’s most vulnerable patients be used instead to pad the bottom line of large hospitals often providing minimal charity care?

This is a question policymakers may be asking after seeing new data from the Berkeley Research Group on an obscure program called 340B.

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Topics: 340B, Berkeley Research Group, HRSA, Congress, hospitals

Patient Assistance Site Relaunched to Better Help Patients, Caregivers

Posted by Holly Campbell on March 3, 2015 at 10:58 AM

PhRMA member companies are committed to ensuring patients can access the medicines they need to stay healthy and live longer, more productive lives. As part of this pledge, today we relaunched the Partnership for Prescription Assistance (PPA) website to provide patients and caregivers with faster, easier access to information on public and private patient assistance programs.

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Topics: Patients, patient assistance program, PPA

Medicare Monday: Helping Hypertensive Patients Live Healthier Lives

Posted by Allyson Funk on March 2, 2015 at 12:25 PM

Hypertension, or high blood pressure, is a chronic condition affecting an estimated 70 million people in the United States.

Unfortunately, just 52 percent of these individuals have their high blood pressure under control.

Many people don’t realize taking their medicines as prescribed can help keep this chronic condition in check – and save money – for both individuals and the health care system overall. 

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Topics: #MedicareMonday

PhRMA’s John Castellani Gives Attendees a 2015 Leukemia Ball Sneak Peek

Posted by John Castellani on March 2, 2015 at 12:00 PM

This piece first appeared on WashingtonExec on February 25, 2015.

On Saturday, March 28, the Leukemia & Lymphoma Society (LLS) will host its 2015 Leukemia Ball. This annual black-tie event starts at 6:30 p.m. and will be held at the Walter E. Washington Convention Center, in Washington, D.C. 

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Topics: Leukemia

Week in Review: Keeping Patients In-The-Know

Posted by Christian Clymer on February 27, 2015 at 1:46 PM

Many patients are not aware of the harmful effects that non-adherence to needed medicines can have on their health, lifestyle and the economy. This week, we explored the ways in which medication adherence and staying up-to-date on important health-related information can help patients.

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Topics: adherence, Rare Diseases, Patients, Part D, Cholesterol

U.S. Trade Representative Continues the Vital IP Dialogue

Posted by Jay Taylor on February 24, 2015 at 1:35 PM

Understanding how intrinsic intellectual property (IP) is to the United States economy (innovative industries support more than a quarter of all jobs in the U.S.), the Office of the U.S. Trade Representative (USTR) each year releases the Special 301 Report, which details the trade barriers that exist with our trading partners and places certain countries on designated “watch lists.”

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Topics: IP, TPP, 301 Report, USTR

Medicare Monday: Medicare Part D & Adherence Help High Cholesterol Patients Save

Posted by Allyson Funk on February 23, 2015 at 10:00 AM

According to the Centers for Disease Control and Prevention, one in three American adults has high cholesterol. For those struggling with high cholesterol, getting needed prescriptions and adhering to the prescribed treatment regimen is critical. As Peggy, a Georgia widow with high cholesterol noted, Medicare Part D has relieved the stress of having to decide between purchasing vital medicines or food, and as a result, she can now treat her chronic condition consistently. 

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Topics: adherence, CDC, Patient Story, Part D, #MedicareMonday, Cholesterol

India—Seizing the Opportunity

Posted by Bill Chin on February 19, 2015 at 6:00 AM

I am excited to be in India this week to discuss the scientific landscape of pharmaceutical research and development. Everywhere I go I see so much potential for India to become a leader in the discovery and development of innovative medicines. India has a large cadre of well-trained pharmaceutical scientists and has more U.S. FDA-approved pharmaceutical facilities than any other foreign country. This country is ripe for growth in discovering and developing new medicines, not only for the people of India but others around the world.

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Topics: R&D, Drug Development, Clinical Trials, India

PhRMA Foundation Launches New Web Platform

Posted by Eileen Cannon on February 18, 2015 at 12:50 PM

For 50 years, the PhRMA Foundation has supported young scientists in their efforts to pursue careers in research and education that will ultimately lead to improved care and treatment options for patients. With our continued commitment to this goal in mind, I’m excited to announce the launch of the Foundation’s new web platform,, which offers new resources on our competitive research grants and fellowships in the most challenging areas of drug discovery.

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Topics: Science, Drug Development, PhRMA Foundation, NIH

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