NORD on the Need for More Collaboration to Drive Progress for Rare Disease Patients
By Stephanie Fischer | February 17, 2014
Many biopharmaceutical companies are actively engaged in the research and development of therapies to treat rare disease, despite challenges such as much smaller patient populations than more...
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#RarePOV Conversation Generates Strong Enthusiasm for Rare Disease Day on February 28th
By Stephanie Fischer | February 12, 2014
In last week’s #RarePOV tweetchat, leading rare disease advocacy organizations and individual patient advocates came together to share resources and plans for the upcoming international Rare...
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