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We are creating a place where we can share ideas, provide the perspective of America's biopharmaceutical companies and, most importantly, listen to you.

NORD on the Need for More Collaboration to Drive Progress for Rare Disease Patients

By Stephanie Fischer  |    February 17, 2014
Many biopharmaceutical companies are actively engaged in the research and development of therapies to treat rare disease, despite challenges such as much smaller patient populations than more common...   Read More

#RarePOV Conversation Generates Strong Enthusiasm for Rare Disease Day on February 28th

By Stephanie Fischer  |    February 12, 2014
In last week’s #RarePOV tweetchat, leading rare disease advocacy organizations and individual patient advocates came together to share resources and plans for the upcoming international Rare Disease...   Read More

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