Guest post: Continued research and development is critical for ALS patients and families

Conversations and healthy debate about issues facing our industry and the health care system are critical to addressing some of today’s challenges and opportunities. The PhRMA blog welcomes guest...
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Speaker Pelosi’s drug pricing plan could result in 56 fewer new medicines over 10 years

A new analysis from economic consulting firm Vital Transformation shows that Speaker Nancy Pelosi’s drug pricing plan, H.R.3, could result in at least 56 fewer innovative medicines for patients over...
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Pelosi’s radical plan would leave ALS patients behind

Last month, House Speaker Nancy Pelosi unveiled a radical drug pricing plan, H.R. 3, that could jeopardize the development of innovative treatments for some of the most challenging diseases and leave...
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ICYMI: Fighting for a cure to ALS

Yesterday at The Atlantic Festival, I had the chance to speak with Amy, a biopharmaceutical researcher focused on amyotrophic lateral sclerosis (ALS). As a young girl, Amy’s father inspired her to...
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New report shows over 500 medicines in development for neurological disorders

Neurological disorders, which include more than 1,000 conditions that disrupt the brain and nervous system, affect an estimated 100 million Americans, nearly one third of the U.S. population....
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New PhRMA Report: Medicines in development for patients with rare diseases demonstrate the promise of innovation

Today, there are 7,000 known rare diseases, or diseases that affect fewer than 200,000 people in the United States. But those suffering from the impact of these diseases have more hope today because...
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Because One Day Isn't Enough

Today is Rare Disease Day, a day meant to raise awareness of the 25 million Americans living with diseases that are often little-known and often, unfortunately, undertreated. In conjunction with Rare...
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Searching for Success in ALS

Yesterday, our friends at ALS Advocacy Tweeted about the Chart Pack: "Need some #ALS success charts in the next edition!" They can rest assured that America's biopharmaceutical research companies are...
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